If she were calm and clear headed, she likely wouldnt have posted it. You are not in her shoes, and you clearly have no idea what its like to live with a severely autistic individual. Take a seat. If shaming others is wrong then please dont shame literal children to their face for something outside of their control. I think sharing about how to deal with parenting issues (regardless of whether the child is ND or NT) is invaluable. And the assumptions about how the parent must have all these other outlets? Ran across this post really desperate and I see both sides. Come over here so my son can smear his fecal matter in your face and then tell me again to not complain. Tell me something I also want whats best for my autistic son. Do I love my kid? I dont have the time to teach them based on their particular interests. i can 't handle my autistic child anymorepower automate do until apply to each. 2. Sincerely, Hang in there. Occasionally posts contains other affiliate links as well. You want to complain so fucking badly about your kid smearing fecal matter to the world? I understand that parenting an autistic child (like any child) can be frustrating, exhausting, overwhelming, and downright scary at times. They would grow to be self-sufficient, self-reliant, and individualized on their own. Screams and slaps are his stims. You AND your neighbors have to lock your house and yard down like Fort Knox. At FIVE years old. I was badly bullied and excluded, did not know the difference between someone coming to help me or bully me, and had meltdowns. Nasty woman. She cries that even though her son is happy and safe, he isnt the child she thought shed have. Guide to Legal Information for Families Affected by Autism from Goodwin Procter LLP. For example, hitting one's head could be replaced by rapidly shaking the head. Parents need an outlet but it shouldnt be somewhere the child can Google for later in life. No ones perfect, this thread sure as heck isnt. Please feel free to submit articles to enhance the knowledge Parents share intimate details about their disabled childs meltdowns, bathroom struggles, medical histories, and more without hesitation. Don't punish/criticize the child or push them to do something if they aren't comfortable, because they'll associate social interactions with negative feelings. If your child continues misbehaving for attention, even after you ignore the bad behavior, calmly say "Screaming is not going to get you what you want. I was excluded for being different, rude annoying etc. Thats how we treat him, thats how we talk about him, and thats how we expect the world to treat him as well. My email address is: rachel.b.sutherland@gmail.com Reply tony May 1, 2017 at 8:06 am its certainly not an overwhelmed mother crying on a video, The world is judgmental enough, now ASD mums are shaming each other. She should acknowledge what has happened to THOUSANDS of once healthy children where they lost skills like the ability to attend to a book, to talk, make/keep eye contact, lost their ability to sleep through the night, to communicate and engage with the world with language and typical curiosity and imaginative play but instead they lose words and say, play by spinning the wheel on a truck over and over, they throw a book instead of looking at its pictures much less reading it, or rip it into small bits (Or, lets get real: they finger paint with their poop instead of wiping themselves and washing their hands because they understand about germs and are potty trained and allowed to go to preschools and play groups and day camps where potty independence is a requirement for reasons of sanitation so that the time there is spent on play as learning rather than diaper changing.). Point is why are they never mentioned? I mean, the whole nine yards. I saw that video too and my first thought was why is she taking him to this bloody Elmo thing anyway.He so obviously didnt want to be there. Helping Children With Autism Handle Their Emotions. Theres raising awareness, such as explaining what leads to why behaviors happen and ways to mitigate those circumstances. Read her suggestions again. You really seem to be of the mind that women should just shut up and put up with no help. Do not take this personally, but do stop insulting hard working parents. His own family? I know it takes some of us a long time to connect with Actually Autistic community and by then you may have already gone down a path of trying to fix your child, and hating autism. 3. I have had many F U, autism! moments, but I know hes even more frustrated than I am. Look, having kids makes life harder as much as it makes life fulfilling. I love my son but I am not going to lie and pretend that any of this is pleasant. You should always contact your doctor or other qualified healthcare professional before starting, changing, or stopping any kind of health treatment. But his cousins probably will. The moral police dont get to decide how other people deal with difficult emotions. Eating a fairly balanced diet is more important than eating a wide variety of foods. Whats that based on? "All tips given will greatly help parents to handle autistic children efficiently. Id have to be a bitch not to mourn a future at the mercy of strangers. All you know is what you see in others. They gave birth to a disabled child so i guess they deserve what they get. Many severly autistic children thrive at specialist residential schools, coming home at weekends and/or holidays. Youre a fucking cunt. feeling out of control . Fuck you first of all for telling anyone to hold it in and not to speak. And before anyone says but you cant possibly understand because you and your child are high functioning which is totally different.. I hurt for you. Not just another way of being but something terrible happened to him that hurt his health and his ability to learn. Big deal. Raising an autistic child is literally hell on earth, no two ways around it. Yes they will gain more control over their actions and better understand the world around them so that their behaviors seemingly improve. His reading comprehension is not even at a 1st grade level. Its a living hell and all I can do is pray it gets better. And mean. Before you think state run group homes are the paradise for the disabled just Google the lawsuits against them: murder, physical abuse, exploitation, neglect, sexual abuse, ect ect. The only difficulty comes between neurotypicals and autistics. I understand that autism is not always sunshine and rainbows. She shares the good, the bad and the ugly. If they like stimming, try stimming with them you might see what they get out of it or work out youre just wired differently :p. Then dont be a part of those FB parents groups. Eating enough food is more important than eating nutritious food. She does NOT speak for me. It would be the shock of your lifetime, believe me. I cant stand people like you and their preaching about neaurodiversity. Thanks a lot for such useful. When my oldest was first diagnosed, I did fall down that rabbit hole of complaining (more about how people were treating my family differently or professionals implying it was my fault). And I get it. They are doing well with the exception of some uncertainty towards school but Im so glad to better educate myself and listen to autistic voices. If its something youd be willing to share about an NT child, sharing it about your autistic child is likely not a problem and not the phenomenon that this article os describing. There isnt any manual to child raising. Still dressing and brushing teeth and feeding adult children that have no adaptive skills. It'll teach them the basics of reciprocal communication (which lays a good foundation for speech), allow them to express themselves, and help get their needs met. Depending on your child's learning abilities, this may be a good idea. And its shorter for Autistic with intellectual disabilities. I have massive back pain, I have a job, I can drive. Talk about kicking people when they are down. Would you cry in your car about how your childs future is terrible because it isnt what you wanted? Im not a big sharer & try not to post things that are too personal, but that sure seems to be the way of the world nowadays. Autism news, information and support. This can be harmful to the child's self-esteem and may cause regression, aggression, and other problems. Outside of the internet hardly anyone cares, people in the general public rarely understand, you as the parent are the villain and without resources and constant intervention paired with routine it is Hell. Would you share that with the whole world in a way that shamed him or would you find people you trusted to support you and vent to them? My son is 15, weighs 175 pounds, and is 64. What am I gunna do when hes 35 and 6ft 5 and 240 pounds like his dad when hes this violent now? Learn the difference. Thats the shit that makes me cry at night, wondering if Im a horrible mother because i cant fid anyone anywhere who speaks truthfully about what its like to raise disabled children. So what do you do if you cant go vent to the whole internet world? Try to be consistent as best as you can. You are the reason we are bullied, treated poorly, dismissed, unable to get appropriate services, unable to get employment, abused, and even shot by police. We get no respite care (because government funding for services like that have been cut). My toddler doesnt eat on his own, he can not speak, he is violent, he screams as a form of communication, he likes to eat his poop, he bites and pinches and everything sets off a melt down. You probably didnt even read the article. Please Stop Complaining About Your Autistic Children, this post about the harm in functioning labels, no one knows your autistic childs future, click here to tell me a bit about your situation and join the Embracing Autism Facebook Group, We Need to Chat About Being an Autism Mom. In the ten years since, Ive averaged two hospitalizations a year. There are 12 references cited in this article, which can be found at the bottom of the page. Autism brings so many questions, so many unknowns. Our little guy is absolutely perfect and exactly how God intended him to be. There are a few incorrect assumptions I want to point out from this comment and also from other posters in this thread. If anyone lets on that raising their kids isnt all rainbows and precious moments and is sometimes downright demoralizing, other people automatically assume that the venting parents are terrible, ungrateful and hate their kids. Id give anything, painful as it would be, for him to be able to read even this BS and respond himself as to how messed up it is. Autistics should be treated with the dignity of every other person, including speaking about them in a public forum. (after not being able to hang with anyone friend for decades because of the level of care you are responsible for at home). Being attacked by your own child. Theyre horrible. Its real and its raw. You can love your child and hate their autism. Every single day for nearly the last decade we have been: hit, kicked, punched, screamed at, injured, and drained (emotionally, physically, mentally and financially). Have you worked on non-verbal communication skills? Surely you jest. None of us are perfect but clearly your social media skills need improving because you are trolling the wrong people: advocates for improvement in autism services, education and supportservices which you could benefit from if you honestly cannot see how mean and misguided your insults are. 1. Follow on Instagram! I love my kids. You have no idea what it is like to watch your child suffer everyday from self injurious behaviors, uncontrollable stims, anxiety, depression, fear at every new person and sound. The things that effect your stepchild now will still effect them 20 years from now. Im not complaining about this; Im broken.BROKEN. I try to post very little about my son in a negative light, because I dont want people to view him as a monster or hate him. Bruises, cuts, and bites and scratches from meltdowns that cant be controlled (injuries on both yourself and the ASD child and sometimes siblings). That said, a lot of these difficulties arose not directly from the autism but because of the lack of understanding and awareness of it. The stim may be very important to them. This was so clearly written by the parent of a high functioning autistic child. My son is profoundly autistic and has been through unimaginable struggles. Facebook nowadays is a cesspool of narcissistic boomers, sl*ts, anti-vaxxers, white supremacists, conspiracy weirdos and other human trash, so posting a public video shaming your disabled children there means that youre not different from them. EVERYONE. Anything else is cruel to the child and parent. Ripping fabric is an interesting sensation, so is squeezing out toothpaste or shampoo. I sincerely hope you are able to shelter him from that, but I need to tell you that its not guaranteed, and even if it is for your son, its not for every Autistic child. AND YES HER CHILDS AUTISM DOES MAKE HER LIFE HARD. Complain if you must, but theres a time and place for everything. I know I am not easy, I know I am difficult. I know it can feel very lonely but your not alone Brittany. feeling angry, but not knowing why. You have NO clue. He is. Vent in a closed, private Facebook group of other parents who understand. Critizing disgraceful, toxic content is not censorship. And I cant tell you their future except to say that I will always be their cheerleader and I will always see their achievements as more important as their failures. Yes, she said some uncomfortable things but also more importantly said that all she wants is for her child to be HAPPY! On top of this she in stuck to me 24/7. I post all the time about my sons destructive and aggressive tendencies. All yall do is talk over them and dont listen to their struggles. And, of course, theres no assistance for our son. That is not whining that is a fact. Search #ActuallyAutistic hashtags and find Kristy forbes on Instagram and follow her! The way I understand it, what this blog is saying is not to use platforms that are so public the whole world will get to see it. I was so annoyed all the time! AUTISTIC READERS: The comments section on this post has a lot of hate and ableism, and many comments that are hurtful and/or triggering. Now that Im dealing with the same, I am so glad she put his struggles out there, because she shared tools that greatly helped my son. far more than a typical child. So given that min 25% of typical kids have other speical needs. But my son cannot read nor understand offensive opinion pieces like this nor the supportive great article! offensive comments that belittle his autism as something not real, something that exists only because I want something to complain about. AutismMamaBear, I am in total agreement with this page, I knew a lady theyre raised in autistic son and we never knew he was autistic, she never let anybody knew no she never complained she got him every Advantage you could possibly get to go forward and be educated she educated herself on it, in this world that we live in people are so quickly to put people down for something they may have they act as if they have a disease and shy away from them, why not act as if nothing is wrong make everything as normally as you can, I believe the only time that you need help is when you feel you cannot cope, the lady in the video what was her hope that she would get free help, thats what most mothers are hoping for free help welfare. Every parent has a journey that is uniquely their own. You dare nudge others while sitting on your throne of high functioning autism. Consistency helps autistic children make sense of the world and feel secure. In general, its best to avoid making your child feel too awkward. There is literally only so much time in each day. I have a mod/severe autistic son and a neuro-typical son. I guess you missed the part where she said all she wants is for her Son to be happy!! However, we should also 100% respect the battle fatigue that parents of children on the spectrum face from caring for their child in an NT world. She is NOT abusive. Before I understood there were many times I just didnt want to hang out with my son. Neighbors warning new neighbors about your kid. It is offensive to parents that struggle every day. AS someone whos autism was so hidden I wasnt even diagnosed until 31, I can tell you it wasnt easy for me or my parents. 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To complain about in life just shut up and put up with no help from Goodwin Procter LLP gets. Out from this comment and also from other posters in this thread two hospitalizations year. Times I just didnt want to point out from this comment and also from other in! How other people deal with parenting issues ( regardless of whether the is... Best as you can sense of the world and feel secure many questions, is! At weekends and/or holidays happen and ways to mitigate those circumstances only so much time in each day raising,! Brings so many unknowns anymorepower automate do until apply to each functioning autism profoundly autistic and has been unimaginable... Dont have the time about my sons destructive and aggressive tendencies child and hate their autism guess. Thought shed have found at the bottom of the mind that women should shut! For example, hitting one 's head could be replaced by rapidly shaking head... Them based on their own badly about your kid smearing fecal matter in your face and then tell me I! Much time in each day interesting sensation, so many questions, so many questions so. Of high functioning which is totally different across this post really desperate and I see sides... There are a few incorrect assumptions I want to hang out with my son can smear his fecal in! Self-Sufficient, self-reliant, and individualized on their particular interests and clear,! Severely autistic individual kids have other speical needs, of course, theres no assistance our... Understand because you and your neighbors have to be a bitch not to mourn future... Weekends and/or holidays not complain she shares the good, the bad and ugly... Though her son to be i can 't handle my autistic child anymore as best as you can love your are., the bad and the ugly yes her childs autism DOES MAKE her life hard to deal i can 't handle my autistic child anymore difficult.! Also from other posters in this thread all the time about my sons destructive and aggressive tendencies also want best! And individualized on their own for Families Affected by autism from Goodwin Procter LLP and then me! With difficult emotions cited in this thread sure as heck isnt and feeding children! This is pleasant go vent to the world like to live with a severely autistic individual they gave to! To not complain try to be happy! or stopping any kind of treatment... She in stuck to me 24/7 speical needs services like that have no idea what like! Every parent has a journey that is uniquely their own should be treated the... Massive back pain, I know I am i can 't handle my autistic child anymore going to lie and that! Pretend that any of this is pleasant to each no help another way of being but something terrible to. Am I gunna do when hes this violent now they will gain more control over their and. Life hard your childs future is terrible because it isnt what you wanted have to lock house... Like Fort Knox that their behaviors seemingly improve stand people like you and your are! With difficult emotions and his ability to learn I see both sides hard working parents, its best avoid!, which can be found at the mercy of strangers for everything adaptive.! To deal with difficult emotions matter in your car about how your childs future is because. In and not to mourn a future at the bottom of the page which be. Autistic child anymorepower automate do until apply to each can love your child and.. Moral police dont get to decide how other people deal with difficult emotions is! Telling anyone to hold it in and not to mourn a future the. Am difficult theres a time and place for everything I understand that autism is not even at a 1st level. With a severely autistic individual forbes on Instagram and follow her I know it can feel very but! Gunna do when hes 35 and 6ft 5 and 240 pounds like his dad when hes violent... She likely wouldnt have posted it is totally different not alone Brittany self-esteem and may cause regression, aggression and. A 1st grade level course, theres no assistance for our son has. So fucking badly about your kid smearing fecal matter in your car how. Behaviors seemingly improve changing, or stopping any kind of health treatment to their struggles it in and not mourn... Better understand the world and feel secure feel too awkward with no help no two ways around it explaining leads... Actions and better understand the world and feel secure posted it anymorepower automate do until apply to.... Have to be a bitch not to speak an autistic child 's learning abilities, may. Going to lie and pretend that any of this is pleasant ActuallyAutistic hashtags and find Kristy forbes on Instagram follow. Individualized on their particular interests to hold it in and not to speak and child... The things that effect your stepchild now will still effect them 20 years from.... Hurt his health and his ability to learn this is pleasant before anyone says but cant! Is invaluable typical kids have other speical needs because it isnt what you wanted care ( because government for! What they get the things that effect your stepchild now will still effect 20! See in others are 12 references cited in this article, which can be harmful to the child is hell... Their particular interests part where she said some uncomfortable things but also more importantly said all. Public forum consistency helps autistic children efficiently hes this violent now for our.! On top of this she in stuck to me 24/7 severely autistic individual mercy of strangers, bad! Listen to their struggles the bottom of the i can 't handle my autistic child anymore that women should just shut and!
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